My name is Blue Haught. I am the father of two living children. My 3rd child was a full-term stillborn who died as the result of umbilical cord torsion (twisting & kinking). My 4th child was born at 30 weeks and survived only a few hours due to complications of fetal hydrops. My desire is to prevent unnecessary fetal deaths deaths and to seek answers as to why our previous two babies had to die. In addition, I am trying to understand if there are correlations with the two deaths. My wife and I have spoken with many doctors that were involved in the care of our two babies who died and they all were adamant that there was nothing that could have been done and that the deaths aren't related. New information has suggested to us that there absolutely was something that could have been done to possibly save our 3rd child and that there may, in fact, be a correlation between him and our 4th child's death. For a more detailed history on our family's plight click on the following link:
http://www.kellyandblue.blogspot.com/
I believe that if there was a database that allowed obstetricians to view data regarding numerous prenatal, maternal, and umbilical cord statistics of babies who die before and during birth, there would be enough information to make necessary changes in how pregnant mothers are monitored and thus provide beter opportunities to intervene when problems arise in utero. What I am proposing is that states or our national government make it manditory for hospitals to conduct a standardized, post-mortem survey of all fetal demises. The survey would include maternal history, obstetric history, exposre to dieseases, pesticides, and several other potential risk factors. Obviously the mother would have the right to refuse the survey, but the information that would be gleaned from such an inquiry would yeild much needed statistics that currently aren't available.
For a better, more medically-based rationale for this please visit the website of a pioneering physician in Louisiana who has researched this issue and found staggering results:
http://www.preginst.com/
Please have patience as I attempt to make this blog more public and userfriendly. I believe that one day, this database will be crediting with saving hundreds, perhaps thousands of lives every year!
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(courtesy of google images)
Thousands of stillbirths occur in the United States each year. Roughly 50% of these births have no listed cause. New research suggests that the umiblical cord may be the culprit, yet no standardization of post-mortem investigation exists. This blog is dedicated to the realization of such a standard.
Umbilical Cord Torsion
(courtesy of google images)
Would you support legislation that required post-mortem inquires on stillbirths?
Proposed Legislation
The purpose of this blog is to gain support in making mandatory a survey of all stillbirth and fetal demise cases in which the umiblical cord is available for investigation. We propose state or federal legislation that would require healthcare facilities to investigate, via a questionaire, all fetal demise cases in order to gather data. This data would then be entered into a national database to further research the increasing evidence that fetal demise is often related to complications involving the umilibical cord. The research and data available today are scant at best. We believe that hundreds, perhaps thousands of fetal deaths may be prevented if access to such a database was possible.
3 comments:
Saw this article today which reminded me of your post. Has to do with researching preterm labor and establishing better screening during pregnancy. Not specifically for umbilical cord issues, but still related...
http://www.medicinenet.com/script/main/art.asp?articlekey=112971
Wonderful blog and so awesome to see you raising other's awareness through your tragedy. I hope I can help spread the word for this blog and that your goals in legislation will be realized.
Thanks for trying to bring more attention to this issue! I lost two babies to cord problems. I'm adding your link to my blog.
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